Providing Care For Someone With Lewy Body Dementia

Caring for a person with Lewy Body Dementi(LBD), changes over the life of the disease. Facing these responsibilities alone is challenging nut not necesary. Help are available from many different resources, like adult day centers, respite care and online and in-person support groups.

Beaware of the entirety of you and your loved ones situation and be prepared to adjust over the course of the disease.

Sharing With Others About LBD

The majority of people are not familiar with LBD. Many healthcare workers are not aware that people with LBD are extremely sensitive to antipsychotic medications. You may need educate healthcare professionals and others that you encounter.

  • In case of emergencies make hospital staff aware of the presence of LBD and have them consult the patients neuroligist before prescribing any prescriptions to control behavior issues.
  • Materials are available to share with health care providrs from the Lewy Body Dementia Association.
  • Educate family and friends about LBD so they are more aware and sensitive to the situation.
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Emergency Preperation

LBD sufferes may have the following symptoms:

  • Visual hallucinations
  • Movement disorders
  • Poor regulation of body functions (autonomic nervous system)
  • Cognitive problems
  • Sleep difficulties
  • Fluctuating attention
  • Depression
  • Apathy

Prepare for emergencies by having available:

  • list of the person’s medications and dosages
  • A list of the person’s health conditions, including allergies to medicines or foods; see this medical alert card
  • Copies of health insurance card
  • Copies of healthcare advance directives, such as a living will
  • Contact information for doctors, family members, and friends